Mayer-Rokitansky-Küster-Hauser syndrome: stigma, body, mass media and bioethics

Authors

  • Daniela Amado Rabelo Universidade de Brasília, Faculdade de Ciências da Saúde, Programa de Pós-graduação em Bioética. Brasília, DF
  • Natan Monsores Universidade de Brasília, Faculdade de Ciências da Saúde, Programa de Pós-graduação em Bioética. Brasília, DF http://orcid.org/0000-0002-0293-8460

DOI:

https://doi.org/10.29397/reciis.v13i2.1484

Keywords:

Mayer-Rokitansky-Kuster-Hauser syndrome, Stigma, Body, Media, Bioethics.

Abstract

This article bases on a study to identify and understand the construction of social stigma related to Mayer-Rokitansky-Kuster-Hauser (MRKH) Syndrome, a condition that exclusively affects women, in 43 electronically transmitted journalistic narratives, using the content analysis, based on Laurence Bardin. The methodological design allowed the emergence of three themes: (a) the anecdotal treatment of MRKH syndrome; (b) the anatomopathological fragmentation: woman-uterus or woman-vagina; and (c) the rhetoric of the suffering of the woman redeemed by doctors in medicine. About 80% of the corpus focused their attention on biomedical issues, and there was a flirtation with experimental technologies and a perspective from paternalistic medicine. Based on a bioethical approach centered on human dignity, it was concluded that there is a need to review the way in which the media presents the affected women (womanwomb), avoiding models of perfection or normality that subsume women to the woman-wife-mother characterization. Women affected by MRKH syndrome are not hollow and without uterus bodies, they have plenitude and can experience the difference.

Author Biographies

Daniela Amado Rabelo, Universidade de Brasília, Faculdade de Ciências da Saúde, Programa de Pós-graduação em Bioética. Brasília, DF

Mestrado em Bioética pela Universidade de Brasília.

Natan Monsores, Universidade de Brasília, Faculdade de Ciências da Saúde, Programa de Pós-graduação em Bioética. Brasília, DF

Doutorado em Bioética pela Universidade de Brasília.

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Published

2019-06-28

How to Cite

Rabelo, D. A., & Monsores, N. (2019). Mayer-Rokitansky-Küster-Hauser syndrome: stigma, body, mass media and bioethics. Revista Eletrônica De Comunicação, Informação & Inovação Em Saúde, 13(2). https://doi.org/10.29397/reciis.v13i2.1484

Issue

Vol. 13 No. 2 (2019): Dossiê 40 anos do movimento LGBT no Brasil: comunicação, saúde e direitos humanos

Section

Original articles

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