Social networks about Autism Spectrum Disorder on Facebook as an interpersonal support: implications in the processes of health governance

Authors

  • Robson Celestino Prychodco Universidade Estadual de Campinas, Faculdade de Ciências Médicas. Campinas, SP http://orcid.org/0000-0003-2070-8076
  • Zelia Zilda Lourenço de Camargo Bittencourt Universidade Estadual de Campinas, Faculdade de Ciências Médicas. Campinas, SP

DOI:

https://doi.org/10.29397/reciis.v13i4.1670

Keywords:

Social network, Clinical governance, Interpersonal relations, Autism spectrum disorder, Social support.

Abstract

The formation of Virtual Social Networks (RSVs) in communities as Facebook has become an important tool for searching for socialization and information. This article presents data on the sources of information used by those responsible for children with Autism Spectrum Disorder (ASD), and how they interfere in the perception of interpersonal support and health governance processes. In the quantitative study, 90 members from the 3 largest RSVs on ASD participated. For the data collection, a semi-structured questionnaire was used. Responses were quantified to facilitate visualization of the data. The results showed that participation in these networks is the main source of information for half of the participants, especially for the portion of the population with lower income; 70/90 volunteers reported feeling supported by RSV partners and 63/90 reported feeling helpless by society in general. A phenomenon that can be explained by the formation of social bonds marked by the reciprocity of lived situations.

Author Biographies

Robson Celestino Prychodco, Universidade Estadual de Campinas, Faculdade de Ciências Médicas. Campinas, SP

Mestrado em Saúde, Interdisciplinaridade e Reabilitação pela Universidade Estadual de Campinas.

Zelia Zilda Lourenço de Camargo Bittencourt, Universidade Estadual de Campinas, Faculdade de Ciências Médicas. Campinas, SP

Doutorado em Saúde Coletiva pela Universidade Estadual de Campinas.

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Published

2019-12-20

How to Cite

Prychodco, R. C., & Bittencourt, Z. Z. L. de C. (2019). Social networks about Autism Spectrum Disorder on Facebook as an interpersonal support: implications in the processes of health governance. Revista Eletrônica De Comunicação, Informação & Inovação Em Saúde, 13(4). https://doi.org/10.29397/reciis.v13i4.1670

Issue

Vol. 13 No. 4 (2019): Dossiê Saúde, etnicidades e diversidade cultural: comunicação, territórios e resistências

Section

Original articles

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