Maternal experience in the care of the child with cerebral palsy: analysis based on Roy theory

Authors

  • Patrícia de Farias Universidade Estadual Vale do Acaraú. Sobral, CE
  • Andréa Carvalho Araújo Moreira Universidade Estadual Vale do Acaraú. Sobral, CE
  • Ana Caroline Lira Bezerra Universidade Estadual Vale do Acaraú. Sobral, CE
  • Maria Adelane Monteiro da Silva Universidade Estadual Vale do Acaraú. Sobral, CE
  • Francisco Rosemiro Guimarães Ximenes Neto Universidade Estadual Vale do Acaraú. Sobral, CE

DOI:

https://doi.org/10.29397/reciis.v12i4.1373

Keywords:

Cerebral palsy, Public policy, Nursing theory, Adaptation, Child care.

Abstract

This study aims to describe the experience of the mothers of children with cerebral palsy in the light of Roy adaptation model, and to identify significant stimuli and adaptive mechanisms to cope with the situation in care. It is a descriptive study with qualitative approach. The subjects were eight mothers of children with cerebral palsy, enrolled in the APAE – Associação de Pais e Amigos dos Excepcionais [Association of Parents and Friends of the People with Special Needs] of a municipality in Ceará, Brazil. The research took place from April to May 2014 and used to data collection a semi-structured interview and for analysis the method of thematic categorization. The Roy theory allowed to recognize that mothers can trigger positive or negative responses through stimuli related to the nursing diagnosis of the child illness: impact, feelings, intrafamily context involved in care, conflicts, confrontations. We had concluded that the nursing should aim for adaptive responses in her work, minimizing the ineffective responses so to obtain the improvement of the mother-child care and to strengthen the affective bond between both.

Author Biographies

Patrícia de Farias, Universidade Estadual Vale do Acaraú. Sobral, CE

Especialização em Saúde Pública pelo Centro Universitário UNINTA.

Andréa Carvalho Araújo Moreira, Universidade Estadual Vale do Acaraú. Sobral, CE

Doutorado em Enfermagem pela Universidade Federal do Ceará.

Ana Caroline Lira Bezerra, Universidade Estadual Vale do Acaraú. Sobral, CE

Graduação em Enfermagem pela Universidade Estadual Vale do Acaraú.

Maria Adelane Monteiro da Silva, Universidade Estadual Vale do Acaraú. Sobral, CE

Doutorado em Enfermagem pela Universidade Federal do Ceará.

Francisco Rosemiro Guimarães Ximenes Neto, Universidade Estadual Vale do Acaraú. Sobral, CE

Doutorado em Ciências pela Universidade Federal de São Paulo.

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Published

2018-12-24

How to Cite

Farias, P. de, Araújo Moreira, A. C., Bezerra, A. C. L., Monteiro da Silva, M. A., & Ximenes Neto, F. R. G. (2018). Maternal experience in the care of the child with cerebral palsy: analysis based on Roy theory. Revista Eletrônica De Comunicação, Informação & Inovação Em Saúde, 12(4). https://doi.org/10.29397/reciis.v12i4.1373

Issue

Vol. 12 No. 4 (2018)

Section

Original articles

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