Carriers of sickle cell disease: reflections of the Black people history on access to the health

Authors

DOI:

https://doi.org/10.29397/reciis.v14i3.1882

Keywords:

Sickle cell disease, Historic, Public policy, Right to health, Black population.

Abstract

Sickle cell disease is the most prevalent genetic disorder in Brazil; according to the PNTN – Programa Nacional de Triagem Neonatal (National Neonatal Screening Program), approximately 3,500 (three thousand, fie hundred) babies with haemoglobin disorders are born each year that is to say 1/1,000 live-born in Brazil. Since the high degree of its incidence, it is necessary to observe how the access to the health is given to patients with this disease, and the diffiulties that afflct this population segment and the effectiveness of existing public policies to confront this kind of genetic hemoglobinopath should be analyzed. Through descriptive and explanatory methodology, it was found that the social segment affected by this disease is historically associated with people of African descent, due to its mutant origin in the African continent in response to the spread of malaria, fact that combines the disease with the factors of historical discrimination against the Black population. Sickle cell disease, in certain cases, was used as a basis for exclusion of Black people from society, as an argument for racial segregation in the United States and as a basis for the idea of whitening the Brazilian population.

Author Biographies

Edith Maria Barbosa Ramos, Universidade Federal do Maranhão, Centro de Ciências Sociais. São Luís, MA, Brasil. Universidade CEUMA, Centro Universitário do Maranhão. São Luís, MA

Doutorado em Políticas Públicas pela Universidade Federal do Maranhão.

Paulo Roberto Barbosa Ramos, Universidade Federal do Maranhão, Centro de Ciências Sociais. São Luís, MA

Doutorado em Direito Constitucional pela Pontifícia Universidade Católica de São Paulo.

Márcia Haydee Porto de Carvalho, Universidade Federal do Maranhão, Centro de Ciências Sociais. São Luís, MA

Doutorado em Direito pela Pontifícia Universidade Católica de São Paulo.

Delmo Mattos da Silva, Universidade CEUMA, Centro Universitário do Maranhão. São Luís, MA

Doutorado em Filosofia pela Universidade Federal do Rio de Janeiro.

Paulo Henrique de Freitas Dutra Júnior, Universidade CEUMA, Centro Universitário do Maranhão. São Luís, MA

Graduando em Direito pelo Centro Universitário do Maranhão.

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Published

2020-09-29

How to Cite

Ramos, E. M. B., Ramos, P. R. B., Carvalho, M. H. P. de, Silva, D. M. da, & Dutra Júnior, P. H. de F. (2020). Carriers of sickle cell disease: reflections of the Black people history on access to the health. Revista Eletrônica De Comunicação, Informação & Inovação Em Saúde, 14(3). https://doi.org/10.29397/reciis.v14i3.1882

Issue

Vol. 14 No. 3 (2020): Dossiê Preservação Digital

Section

Original articles

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